Rambling Rees

I’m sitting in the hospital, waiting for the time For the doc to come and say to me “your little girls alright.” She comes into our room and is looking kinda glum She says “theres something wrong,   I’m very sorry hun” “Your daughter has a syndrome I’m sorry to have to say” “She may not talk she may not walk she wont be able to play” I take my little daughter and I hug her really tight I tell her that I love her and everything's alright For she is my little girl my ray of shining light I loved her then, I love her now, I will love her for all time We take each day just as it comes for that is what we do We smile and laugh and play alot and do some therapy too You see my daughter has a syndrome, but I focus not on that I focus on the good things and not just on the sad. She needs some extra care, some extra patience too She cant yet talk she cant yet walk but she would love to play with you If we try really hard and work at it each day Who knows just what she’ll do, who are we to...

When my little one was 5 weeks old she was taken into hospital, as she was "failing" to thrive, she just simply could not put weight on, it used to take me an hour sometimes and hour and a half to get 1oz of milk into her and more often than not she would then be a little bit sick afterwards.  In hospital they ran numerous tests, first they thought she had a tumour in her tummy, so she had bloods done and an x-ray of her tummy - they found nothing except that she was suffering gastro-oesophageal reflux. Then they noticed that she was breathing erratically so they suspected a tumour in her lungs, again more bloods and another x-ray of her chest this time - again they found nothing. They ran numerous test, they had samples of every type of secretion possible, everything came back negative. Then they noticed that her skin was mottled and they suspected meningitis, my poor baby girl had to go through a lumbar puncture and they wouldn't let us with her, by now my sister ...