about me

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I suppose I should let you know something about me, well I'm 30 something and after my next birthday I will be mid thirties and therefore I suppose I will be on the downward slope to 40.
I live in the North East of England, near the beach, I live with my daughter Neve and my partner (more commonly known as the Mr.)
I am a full time Mammy to my daughter, Neve who has a rare genetic syndrome called Joubert Syndrome. (more about this later).
I used to work as a waiting list officer in the NHS for the plastic surgery department, until I had my daughter and discovered that she would need full time care.
I am constantly trying to start a diet and constantly forgetting Im on a diet.  I'm getting married next year to my Mr who has swept me off my feet. (again more about his later)

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Joubert Syndrome-

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